Podcast Episodes
Our patients, families, and caregivers have been asking us for more ways to learn about rare blood cancers and bone marrow failure diseases. So, we're coming to you today, thanks to generous support from individual donors and our corporate partners.
Recent FDA Approval of Danicopan for Patients with PNH
Dr. Caroline Piatek describes the purpose and use of this new drug approval for some patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria.
Athletic Service Member Conquers Aplastic Anemia and MDS with Transplant
Damian was very active when routine blood work showed a problem. But Damian decided that going through treatment would be his mission, even if that meant two transplants. Listen here to his story.
Conquering PRCA: a conversation with Ron Duncan, Patient Survivor
Ron had a sudden alert when he learned he had one of the rarest of diseases. Listen to this conversation to learn how he managed diagnosis, treatment, and survivorship in this episode.
Hepatitis-Associated Aplastic Anemia with Dr. Roma Rajput
Find out the relationship between Hepatitis and Aplastic Anemia in this episode with Dr. Roma Rajput.
Brian Anderson Explains Life, Treatment, and Surviving MDS
AAMDSIF Director of Patient Programs, Leigh Clark, asks Brian about his life before diagnosis, during "watch and wait," through transplant, to now. Listen here to his myelodysplastic syndromes, or MDS, patient journey.
Conversation with patient, Mario Rivera: His Experience with Aplastic Anemia
AAMDSIF Director of Patient Services, Leigh Clark, asks Mario about his journey with Aplastic Anemia. The conversation includes treatment and survivorship.
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