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“Everything is going to be okay:” Jocelyn’s Story of Aplastic Anemia, PNH, and Survivorship

Person's Name:

Jocelyn Boyer

Before diagnosis, Jocelyn’s life was normal, predictable. She was thriving her senior year in college, studying Public Relations. In 2008, she was working, volunteering, attending classes---all the normal activities for a 20-year-old.

But one day that changed. Extreme fatigue set in, making it difficult to walk a single flight of stairs. At first, she dismissed the fatigue to her rigorous schedule.

Bone Marrow Disease(s):

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How a Delay in Treatment nearly Cost her Life - Veronica's Story

Person's Name:

Veronica Ruiz

Veronica learned that delaying treatment was not a good idea.

That delay nearly ended her life.

Bone Marrow Disease(s):

Aplastic Anemia

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Ashley and Alayna: A Mother's Story

Person's Name:

Ashley Numbers

September 16 through December 20 will stand out in Ashley’s mind.

Forever.

These are the days she spent in the hospital with her feisty three-year-old, Alayna, for conditioning and bone marrow transplant.

The summer of 2019 was already big with a wedding to plan. The toddler and her baby brother were enjoying everything that small ones do, including riding dirt bikes with Daddy.

Bone Marrow Disease(s):

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Mark lives symptom-free with MDS, but it's still "like an albatross"

Person's Name:

Mark

Mark had no symptoms common to bone marrow failure patients.

Not one.

Bone Marrow Disease(s):

Myelodysplastic Syndromes (MDS)

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2019 update! My Son, the Athlete and Survivor - Sam Thrives Years after Transplant

Person's Name:

Samuel Meidinger

Bone Marrow Disease(s):

Aplastic Anemia

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Soldier faces down Aplastic Anemia in 1980, paving the way for ATG treatment!

Person's Name:

Johnnie Burford

Johnnie Burford was deployed in Korea. He was a muscular 195-lb athlete, a proud member of the US Army Second Division. Nothing stopped him from performing his duty. Yet a rapid weight loss of 100 pounds, coupled with unusual bruising, alerted him that something was very wrong.

Bone Marrow Disease(s):

Aplastic Anemia

Content source:

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Two transplants mean new life for Derek: a story of high-risk MDS, perseverance, and advocacy

Person's Name:

Derek Fakehany

Derek was turning 45 and had noticed occasional swelling in his legs. Due to a family history of heart disease, his wife, Amy, was uneasy, noticing this symptom. She encouraged Derek to see his doctor for more thorough testing.

Bone Marrow Disease(s):